About
Over 8 years as a patient advocate spent travelling the globe developing strategic…
Activity
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We are excited to be sponsoring the 19th World Congress on Controversies in Neurology (CONY) this week in Prague! One highlight for us was a…
We are excited to be sponsoring the 19th World Congress on Controversies in Neurology (CONY) this week in Prague! One highlight for us was a…
Liked by Benjamin Stecher
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A project led by Ziv Gan-Or at The Neuro of McGill University and Martine Tétreault at Université de Montréal has received more than $8 million to…
A project led by Ziv Gan-Or at The Neuro of McGill University and Martine Tétreault at Université de Montréal has received more than $8 million to…
Liked by Benjamin Stecher
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An absolutely brilliant representation of Parkinson’s symptoms (both visible and hidden) by artist Petra van der Putten Clauwens. Thanks for…
An absolutely brilliant representation of Parkinson’s symptoms (both visible and hidden) by artist Petra van der Putten Clauwens. Thanks for…
Liked by Benjamin Stecher
Experience
Education
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Self Study Advocate
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Publications
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Reprogramming the Brain
Springer Publishing
A Guide to the Future of the Brain and Neuromodulation by a Patient and his Doctor
Offers a personal account of treating Parkinson's Disease. Written for anyone with an interest in the brain, the future of neuromodulation, and where medicine is taking us. Provides an expert's approach to a first-of-its-kind adaptive deep brain stimulator.Other authorsSee publication -
Brain Fables
Cambridge University Press
An estimated 80 million people live with a neurodegenerative disease, with this number expected to double by 2050. Despite decades of research and billions in funding, there are no medications that can slow, much less stop, the progress of these diseases. The time to rethink degenerative brain disorders has come. Acclaimed neurologist Dr Alberto Espay and Parkinson's advocate Benjamin Stecher present compelling evidence that these diseases should be targeted according to genetic and molecular…
An estimated 80 million people live with a neurodegenerative disease, with this number expected to double by 2050. Despite decades of research and billions in funding, there are no medications that can slow, much less stop, the progress of these diseases. The time to rethink degenerative brain disorders has come. Acclaimed neurologist Dr Alberto Espay and Parkinson's advocate Benjamin Stecher present compelling evidence that these diseases should be targeted according to genetic and molecular signatures rather than clinical diagnoses. There is no Parkinson's or Alzheimer's, simply people with Parkinson's or Alzheimer's. An incredibly important story never before told, Brain Fables is a wakeup call to the scientific community and society, explaining why we have no effective disease-modifying treatments, and how we can get back on track.
Other authorsSee publication -
Triggers, Facilitators, and Aggravators: Redefining Parkinson’s Disease Pathogenesis
Cell Press
A new conceptual model for PD pathogenesis
Languages
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English
Native or bilingual proficiency
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Chinese
Professional working proficiency
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Korean
Limited working proficiency
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Polish
Elementary proficiency
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French
Limited working proficiency
More activity by Benjamin
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First person with Parkinson's disease has received GT-02287, an oral, brain-penetrant, potentially-disease-slowing GCase modulator in development for…
First person with Parkinson's disease has received GT-02287, an oral, brain-penetrant, potentially-disease-slowing GCase modulator in development for…
Liked by Benjamin Stecher
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Super proud mom to one of the panelists! <3
Super proud mom to one of the panelists! <3
Liked by Benjamin Stecher
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This upcoming Care Partner Talk Series is going to be incredible, all panelists are children of someone with Parkinson's. Some of them grew up with…
This upcoming Care Partner Talk Series is going to be incredible, all panelists are children of someone with Parkinson's. Some of them grew up with…
Liked by Benjamin Stecher
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Love what Nick and the Montara team are doing - isolating drug effects in the brain while blocking side effects in the periphery - and looking…
Love what Nick and the Montara team are doing - isolating drug effects in the brain while blocking side effects in the periphery - and looking…
Liked by Benjamin Stecher
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In February 2025, the U.S. Food and Drug Administration approved the first adaptive, or self-adjusting, deep brain stimulation (DBS) system for…
In February 2025, the U.S. Food and Drug Administration approved the first adaptive, or self-adjusting, deep brain stimulation (DBS) system for…
Liked by Benjamin Stecher
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Don't miss this chance to hear directly from our incredible clinical specialists Brianna Hood, PT, DPT and Amanda Hare, DNP, AGNP, CMRD about all the…
Don't miss this chance to hear directly from our incredible clinical specialists Brianna Hood, PT, DPT and Amanda Hare, DNP, AGNP, CMRD about all the…
Shared by Benjamin Stecher
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Amanda Hare, DNP, AGNP, CMRD and Brianna Hood, PT, DPT have helped countless #PwPDs improve their quality of life and better manage their symptoms.…
Amanda Hare, DNP, AGNP, CMRD and Brianna Hood, PT, DPT have helped countless #PwPDs improve their quality of life and better manage their symptoms.…
Liked by Benjamin Stecher
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At Sense4Care, we celebrate our women talent every day. This goes to Ester, Isabel, Anna, and Chiara, our #womenintech that demonstrate to us every…
At Sense4Care, we celebrate our women talent every day. This goes to Ester, Isabel, Anna, and Chiara, our #womenintech that demonstrate to us every…
Liked by Benjamin Stecher
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A reminder the 2026 Canada Excellence Research Chairs call is now live. The stated objective is to attract the world’s top researchers to Canada…
A reminder the 2026 Canada Excellence Research Chairs call is now live. The stated objective is to attract the world’s top researchers to Canada…
Liked by Benjamin Stecher
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