In our work, we have had the privilege to learn from #RareDisease communities about the importance of using authentic imagery to create impactful, disorder-specific materials. To help expand knowledge on this key topic, our UK team partnered with Metabolic Support UK to conduct new research that was recently published in the peer-reviewed journal Rare. The study results highlight the many ways that incorporating the “real faces” of people living with #RareDiseases in materials can improve engagement, address stigma, and create a lasting emotional connection. For actionable insights on how to apply these findings to the development of patient materials, read the publication here: https://lnkd.in/e-EsxcCR
Chiesi Global Rare Diseases
Fabbricazione di prodotti farmaceutici
Boston, MA 18.305 follower
We are making a difference in rare.
Chi siamo
Chiesi Global Rare Diseases is a business unit of the Chiesi Group established to deliver innovative therapies and solutions for people affected by rare diseases. As a family business, Chiesi Group strives to create a world where it is common to have a therapy for all diseases and acts as a force for good, for society and the planet. The goal of the Global Rare Diseases unit is to ensure equal access so as many people as possible can experience their most fulfilling life. The unit collaborates with the rare disease community around the globe to bring voice to underserved people in the health care system.
- Sito Web
-
https://chiesirarediseases.com/
Link esterno per Chiesi Global Rare Diseases
- Settore
- Fabbricazione di prodotti farmaceutici
- Dimensioni dell’azienda
- 501 - 1000 dipendenti
- Sede principale
- Boston, MA
- Data di fondazione
- 2020
- Settori di competenza
- Rare Disease, Hematology, Ophthalmology, Immunology e Inborn errors of metabolism
Aggiornamenti
-
Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply now for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any BioLabs site located in the U.S. Up to two Golden Tickets will be awarded to early-stage biotech companies that are accelerating research and development efforts in non-viral delivery technologies de-targeting the liver, ideally used for the treatment of rare diseases. Applications are due by Friday, March 14, 2025. For more information, visit: https://lnkd.in/encw7T2v #RareDiseases #ChiesiGlobalRareDiseases
-
-
The impact of #RareDiseases is more than you can imagine. On #RareDiseaseDay, we come together with the global rare disease community connected by a shared purpose: creating meaningful change. By truly listening, building connections and amplifying the voice of the community, we can shape a future that reflects the needs and insights of those living with #RareDiseases. Learn more at https://lnkd.in/eThs-mRK EURORDIS-Rare Diseases Europe Rare Disease Day #ChiesiGlobalRareDiseases
-
-
Don’t miss your chance to submit an application for the Chiesi Golden Ticket Competition! Apply now for a chance to receive one year of fully paid individual bench space and membership at a fully equipped laboratory at any BioLabs site located in the U.S. Up to two Golden Tickets will be awarded to early-stage biotech companies that are accelerating research and development efforts in non-viral delivery technologies de-targeting the liver, ideally used for the treatment of rare diseases. Applications are due by Friday, March 14, 2025. For more information, visit: https://lnkd.in/encw7T2v #RareDiseases #ChiesiGlobalRareDiseases
-
-
#DYK 1 out of every 10 Americans lives with a #RareDisease? As a proud sponsor of this year’s #RareDiseaseDay events organized by the National Organization for Rare Disorders, we are honored to stand with advocates across the U.S. and around the world in recognizing the strength and resilience of the global rare disease community. Learn more about the special activities planned in the U.S. for Rare Disease Day 2025 here: https://lnkd.in/eUQeDYTB #ShowYourStripes #RareDiseases #ChiesiGlobalRareDiseases
-
-
Blindness doesn’t always mean being in the dark. How is #LHON different? Watch below as Paola sheds light on this rare disease and learn more at: r.cheisi.com/LH2
-
Having a diagnosis does not mean knowing how to deal with it, especially for #Fabry disease that can impact people’s lives in many different ways. This can mean uncertainty, fear, but Ria teaches us that asking for help is always a good way to start. Learn more on www.itsrareforme.com #ItsRareForMe #ChiesiGlobalRareDiseases #rarediseases
-
We were honored to attend the 2024 debra of America Benefit gala where we joined the #EpidermolysisBullosa (EB) community for a special evening to celebrate the strength and resilience of people living with EB and their families. During the event, our team was proud to accept an award recognizing our work to help drive positive change for the EB community. We are grateful for the opportunity to serve the EB community and collaborate with debra of America and other leaders who share our commitment to making a meaningful impact through continued partnership and advocacy. #RareDiseases #ChiesiGlobalRareDiseases
-
-
Our journey as Chiesi Global Rare Diseases continues! Together, we’re building a brighter future. Visit r.chiesi.com/GRD3 to learn more.
-
Look at Paola; you'll notice her holding her cell phone, a common sight for many of us every day. However, for Paola, that phone holds extra significance, making it particularly precious. Paola lives with #LHON, a rare condition that has made her progressively blind. Her cell phone has evolved into a crucial tool, serving as a means for her to connect with the world. Discover more about Paola at www.itsrareforme.com #ItsRareForMe #ChiesiGlobalRareDiseases #RareDiseases