Patient Empowerment Network

Living with a blood cancer such as chronic lymphocytic leukemia (CLL) involves profound challenges that impact every aspect of a patient’s life, from their physical health to their emotional well-being. Our panel discussion with leading advocates in the #oncology community explores the emotional hurdles faced by patients with #CLL, including those from racial minority groups, as uncovered by our Emotional Impact Report. Watch the full discussion: https://bit.ly/445MlyY [Video description: Highlights from our Emotional Impact Report panel discussion featuring advocates, patients, a researcher and a physician.]

📣 Today, we celebrate the lifesavers, the listeners, and the leaders.💙 Today’s for the white coats—and the big hearts behind them. On National Doctors' Day, Patient Empowerment Network thanks the physicians who go beyond treatment—to truly empower. We honor the doctors who take time to explain, encourage, and strive to understand their patients beyond just a diagnosis. We’re proud to support their work with trusted educational tools that improve patient understanding, trust, and outcomes. Happy #NationalDoctorsDay to the compassionate clinicians who treat more than a diagnosis—they treat the whole person. 👏🩺 When patients and doctors speak the same language, everyone wins. 🩺 #NationalDoctorsDay #PatientEmpowermentNetwork #ThankYouDoctors #HealthEquity Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama

🎗️ Kidney cancer doesn’t wait—neither should patients. Kidney cancer cases are rising, yet too many patients are left searching for answers instead of solutions. At Patient Empowerment Network, we simplify the science and demystify the process—so patients can reclaim their time and peace of mind. Explore how our expert-driven resources help patients understand their diagnosis, treatment options, and next steps—with less stress and more support. Explore: https://lnkd.in/gU4GjDdn #KidneyCancerAwarenessMonth #PatientEmpowermentNetwork #HealthLiteracy #OncologySupport Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama

⏳ Your time is precious. A cancer diagnosis shouldn’t mean spending hours lost in medical jargon. At Patient Empowerment Network, we help you take back time—so you can focus on what matters most. 💙 ✅ Fast answers ✅ Clear resources ✅ Real support 🔗 Visit www.powerfulpatients.org to explore free tools & programs. #TimeMatters #PatientEmpowermentNetwork #CancerSupport #HealthLiteracy #YourTimeIsPrecious Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama

📣 EMPOWERMENT IN ACTION: What does real self-care look like during a cancer journey? At Patient Empowerment Network, we’re constantly asking: What happens when lived experience meets evidence-based self-care? The answer? Wisdom worth amplifying. We asked our Empowerment Leads - patients who’ve turned advocacy into action - what helped them emotionally and physically through treatment. 🧠 Jessica turned to yoga and made it work for her body. 💬 Carly found power in conversations and community. 😴 Linda prioritized rest—and unapologetically so. 👉 These aren’t just self-care tips. They’re micro-strategies that enhance resilience, reduce isolation, and model how patients can become co-pilots in their care. 🎯 Why does this matter to industry leaders, clinicians, digital health innovators, and nonprofit strategists? Because when we design systems that integrate peer insights, we create more human-centered cancer care. 📈 According to a 2022 Cancer Experience Registry report from Cancer Support Community, patients who engaged in peer support and mind-body practices reported: 22% improvement in emotional health 30% increase in treatment adherence 3X higher satisfaction with care navigation Let’s reframe empowerment—from a buzzword to a measurable, replicable model. It starts by listening to those who’ve walked the path. 🗣️ We want to hear from you. What are you doing to embed patient voice in your strategy, program, or product design? 🔗 Explore more voices like these: PowerfulPatients.org #PatientEmpowermentNetwork #OncologyLeadership #DigitalHealth #HealthEquity #CancerCare #CancerAdvocacy #PatientVoice #HealthInnovation #SelfCareInCancer #PatientExperience #LinkedInForGood Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama Linda Ryan Carly Flumer, MS Jessica Catlin

Breaking the Silence on Anal Cancer Awareness: Why Early Detection Matters Did you know anal cancer diagnoses have risen nearly 3% annually over the past decade? Despite its increasing incidence, stigma and discomfort in discussing symptoms continue to hinder early diagnosis, significantly impacting outcomes. Today, on #AnalCancerAwarenessDay, Patient Empowerment Network urges healthcare professionals and industry leaders to foster open, stigma-free conversations about symptoms and screening. Evidence shows that survival rates improve dramatically when patients feel empowered to discuss sensitive symptoms early. 💬 Let's discuss: How is your organization removing stigma around sensitive cancers and promoting earlier diagnosis? #CancerAwareness #HealthEquity #PatientEmpowerment #OncologyCare Tracy Rode, CNE Aicha Diallo, MPH, CHES Andrea Winchell Joelys Gonzalez Bisono Kara Rayburn Nicole Normandin Nykema Mpama

The #MMCollective aims to fully inform people of their myriad options and more effectively connect them to all available resources in their behalf. One such resource, of course, has been immunomodulators (IMIDs), which remain the bedrock therapy in #multiplemyeloma for both patients and practitioners. Let’s dive deeper. Learn why: https://lnkd.in/e_g6Cvub 📹

March is National Social Work month! Today, on World Social Work Day, Patient Empowerment Network celebrates the theme 'Strengthening Intergenerational Solidarity for Enduring Wellbeing'. As Joachim Mumba, International Federation of Social Workers President, so eloquently puts it, "Together, we can build a world where compassion and solidarity lay the groundwork for lasting well-being for everyone." This aligns perfectly with the National Social Work Month theme, 'Social Work: Compassion + Action', highlighting the profession's dedication to turning empathy into tangible change. In oncology, social workers bridge emotional care and clinical success, enhancing patient outcomes across generations. How can we better integrate social work into oncology care models to leverage this intergenerational solidarity and compassion-driven action? Share your insights and let's discuss! #WorldSocialWorkDay #SocialWorkMonth #CompassionPlusAction #OncologySupport

A huge THANK YOU to our Financial Empowerment Lead, Diahanna Vallentine, BCPA, for her work in empowering patients and care partners with the Financial Resource Guide. From breaking down insurance complexities to sharing essential resources, her expertise empowers those who need it to make informed decisions with confidence. Check out the guide here: https://lnkd.in/eauR4wkP

The wait is over! Our Financial Resource Guide is now available. Get expert insights on financial support, budgeting strategies, and insurance options. Download it today! https://lnkd.in/eauR4wkP