Wannes Degelin’s Post

We grab World Arthritis Day as an additional moment to raise awareness about arthritis and other rheumatic diseases which affect 1 in 5 people and 1 in 1000 children in Belgium*. It’s crucial that the more than 80,000 people in Belgium* living with rheumatoid arthritis, their loved ones and healthcare professionals have access to the right care and resources. That’s why this year’s theme, ‘Informed Choices, Better Outcomes’ resonates strongly. A special shoutout to Rheuma.be (KBVR- SRBR) (an initiative of KBVR-SRBR, patient organisations ReumaNet, CLAIR and healthcare professionals) which gathers clear information on Belgian rheumatologists and specialised centres for helping to make informed choices. #WAD2024 #WorldArthritisDay #ReimagineMedicineTogether *source: rheuma.be

🌐 It's World Arthritis Day! Let's Raise Awareness 🌐
 💡 Did you know? In the EU alone, over 120 million people live with Rheumatic and Musculoskeletal Diseases (#RMDs), yet many remain undiagnosed. These conditions significantly affect quality of life, often restricting mobility, daily activities, and the ability to work, which can lead to increased dependency on healthcare services and social support systems. 🌍 World Arthritis Day (#WAD) was launched by Arthritis and Rheumatism International in 1996 and is observed globally every October 12. This day is dedicated to raising #awareness and advocating for better care for millions worldwide. 💙 At #Ropca, we’re committed to bringing innovative solutions and better support for those affected. Let’s spread awareness and work toward a healthier future for all. 🤝 🔗 Learn more about World Arthritis Day: https://lnkd.in/e8T-u25K #WorldArthritisDay #RMDsAwareness #HealthcareInnovation #Ropca #WorldArthritisDay2024 #WAD24

Undiagnosed rare diseases represent a unique, critical, but often neglected, aspect of the rare disease community. For those living with an undiagnosed condition, the absence of a diagnosis often means years of uncertainty, limited access to appropriate care, and a lack of understanding from the medical community. These individuals are an integral part of our community, and it's essential that their needs are recognised and addressed! We’re proud to be a part of UDNI (Undiagnosed Diseases Network International). Starting today, EURORDIS Research & Policy Senior Manager, Gulcin Gumus, will be in attendance at the 13th Conference of the Undiagnosed Diseases Network International. Her presentation will highlight the importance of involving patients and their families in the journey toward finding answers and improving care. By focusing on those still seeking a diagnosis, we can drive meaningful progress in research, healthcare, and support systems, ensuring that no one is left behind. Learn more about the conference 👉 https://lnkd.in/ewXYfasa #RareDiseases #UndiagnosedDiseases #PatientEngagement

In our latest ‘Let’s Talk About’ article, Dr Alejandro de Molnár d'Árkos Millorete, Senior Medical Advisor at Cigna Healthcare, focusses on autoimmune diseases. Conditions such as lupus, rheumatoid arthritis, type 1 diabetes, and multiple sclerosis are among more than 80 diseases known to the medical community and yet, in many cases the cause is unknown. Read the full article to learn about the conditions that affect 10% of the global population.👇 https://upl.inc/gsm6iz Let's keep talking about our health. #CignaHealthcare #LetsTalkAbout #Autoimmune

🌍 Today is World Arthritis Day – a day to shine a spotlight on the millions of people affected by rheumatic diseases worldwide. Many patients face significant delays in diagnosis, often living with pain and uncertainty while waiting for answers. Early detection is crucial in managing rheumatic diseases and improving quality of life. Let’s use this day to raise awareness of the importance of timely diagnosis and support innovations in healthcare that can help reduce this gap. Join the movement to promote earlier diagnosis, better patient outcomes, and a brighter future for those living with rheumatic diseases. #WorldArthritisDay #EarlyDiagnosis #RheumaticDiseases #HealthcareAwareness #ArthritisAwareness

In our latest ‘Let’s Talk About’ article, Dr Alejandro de Molnár d'Árkos Millorete, Senior Medical Advisor at Cigna Healthcare, focusses on autoimmune diseases. Conditions such as lupus, rheumatoid arthritis, type 1 diabetes, and multiple sclerosis are among more than 80 diseases known to the medical community and yet, in many cases the cause is unknown. Read the full article to learn about the conditions that affect 10% of the global population.👇 https://upl.inc/gsm6iz Let's keep talking about our health. #CignaHealthcare #LetsTalkAbout #Autoimmune

Rare diseases need our attention, not just on Rare Disease Day. Recently published research from SMA Europe and Roche benchmarks care for adults living with spinal muscular atrophy (SMA) across Europe. It provides a comprehensive analysis of the situation faced by a group that makes up 50% of the SMA population. The key takeaway? While innovations in care are changing lives, not enough is being done for adults with SMA, who still face significant challenges. The findings underscore the urgent need for a holistic approach to SMA care, one that supports individuals at all time points throughout their lifetime. Despite the need for improvements, there are clear examples of best practice care for adults with SMA being implemented by healthcare professionals, policy makers and patient groups around Europe, demonstrating encouraging opportunities for progress. For those looking to dive deeper into the findings, please visit https://lnkd.in/grkSNEin. It's time to push for improvements in care for all those affected by SMA. #SpinalMuscularAtrophy #SMA #RareDisease

This week, our Alexion Canada General Manager, Karen Heim, took part in a panel discussion at the Canadian Organization for Rare Disorders Fall 2024 Rare Disease Conference in Montreal. The group discussed the recent study that examined the economic cost of living with a rare disease across Europe and what opportunities exist for addressing these costs in Canada. Karen highlighted three key themes to address the ongoing challenges for those living with rare diseases: - Reducing the time to access innovative therapies - Reducing time to diagnosis - Increased data sharing and collection Through collaboration with stakeholders across the healthcare system, we can create better outcomes for patients and their families. #RareDisease #HealthcareInnovation #Collaboration Bill Dempster, Durhane Wong-Rieger, Rebeccah Marsh, Tara Cowling

On October 12, World Arthritis Day raised awareness about the realities of living with rheumatic and musculoskeletal diseases (RMDs) and to advocate for better research, education, and patient support. This year’s theme – “Informed Choices, Better Outcomes” – underscored how important it is for people living with RMDs to make informed, evidence-based decisions in partnership with their healthcare teams. Know more about #Univestin® for Inflammation, Pain and Joint Health: marketing@generex.in

Frank Watanabe emphasizes the unique challenges faced by those with dermatologic diseases and highlights how dermatologists and their patients deserve the dedicated support of specialized companies. Listen to the whole episode here: https://lnkd.in/g4aJagez